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Pre Progress Recorder case study

29 May 2017 - By Scott Heappey

While the Progress Recorder App was in development we underwent paper trials.

We asked our user who suffers from parkinsonism symptoms to draw the spiral over the course of a month while taking notes in regards to medication, supplements, treatment, mood, stress, environment, diet, exercise and general activities.

Here are his recordings:

Pre Progress Recorder case study Monday 10 April 2017 - 07:13 AM

Medication: 1.5 mg Sifrol ER. Supplements: Mega PC-35 x3, Evening Primrose x3, Co-Q10 x1, VegeNAC x2, Glutathione Reduced x2. Ketogenic diet. Stressed from driving all weekend and a lack of sleep.

Pre Progress Recorder case study Monday 10 April 2017 - 06:05 PM

Same medication/supplements. Ketogenic lapse. Long day at work. Feel more relaxed now that it's done for the day. Relaxing night watching TV.

Pre Progress Recorder case study Tuesday 11 April 2017 - 06:55 AM

Same medication/supplements/diet. No breakfast. Just woke up. Really cold! Didn't sleep well.

Pre Progress Recorder case study Wednesday 12 April 2017 - 07:30 AM

Medication 0.375 mg. Same supplements/diet. Woke up early. Had breakfast already.

Pre Progress Recorder case study Wednesday 12 April 2017 - 09:00 PM

Same medication/supplements/diet. Relaxing day working from home. Worked all night.

Pre Progress Recorder case study Thursday 13 April 2017 - 11:05 PM

Same medication/supplements/diet. Long day at home working. Pretty chilled.

Pre Progress Recorder case study Friday 14 April 2017 - 08:03 AM

Same medication/supplements/diet. Realised that it's easier if you dig the pen into the paper.

Pre Progress Recorder case study Tuesday 25 April 2017 - 09:25 PM

Same medication/supplements/diet. Anzac day. Bad sleep. Went to bed early. Woke up at 9.

Pre Progress Recorder case study Saturday 29 April 2017 - 12:30 PM

Same medication/supplements/diet. Binge watching TV. Not motivated to do much else. Worked at same time.

Pre Progress Recorder case study Thursday 04 May 2017 - 11:30 PM

Same medication/supplements/diet. 1 year anniversary of diagnosis. Yay! Worked all night. Sore neck.

Pre Progress Recorder case study Wednesday 10 May 2017 - 11:05 PM

Same medication/supplements/diet. It's been a good week. Haven't felt bad since Saturday.

Pre Progress Recorder case study Thursday 11 May 2017 - 07:49 AM

Same medication/supplements/diet. Woke up early to garbage truck. Late on supplements.

Pre Progress Recorder case study Thursday 18 May 2017 - 08:30 PM

Same medication/supplements/diet. Went to dentist and had amalgum fillings removed. Doing detox.

Pre Progress Recorder case study Friday 26 May 2017 - 12:30 AM

Same medication/supplements/diet. Moving things, cleaning and taking photos all night.

It seems that the user's symptoms didn't change when the medication was reduced to a quarter. Symptoms were generally worse first thing in the morning and during or after active weekends. Diet may have had an affect - but it's hard to say. Since medication has reduced, the patient feels much better but is concerned that his hand is getting slower and heavy - doesn't move much.

As far as Progress Recorder goes, It appears that simply taking notes is a little repetitive and doesn't prompt useful information. It would be ideal to enter medication once and then have the option to make changes as needed and include sliders for sleep and stress levels.

How Project Recorder can help?

You can identify possible reasons for the fluctuation of your symptoms. The information can then be shared with your specialist.